7-month-old Toronto baby with rare liver disease in 'desperate' need of a transplant
A seven-month-old baby is in “desperate” need of a liver transplant in Toronto, but with her parents incompatible and extended family far away in Bangladesh, all she can do is wait for her name to reach the top of the donor list or hope for a living match.
“We have been on the list for almost four months now and the doctor said it is completely uncertain. They say babies are a priority but they will not tell us how many are above us or what our position is. We don't have any idea of how long we will have to wait,” Aliza’s mother Preetha Haque told CTV News Toronto.
Ontario Health says wait times are based on a variety of factors, including blood type, the patient’s health, and organ type. Their data indicates 235 people of all ages in the province are waiting for a liver transplant.
Aliza’s medical team suggested trying to find a living donor, a healthy person who gives a piece of their liver to a patient in need, since it can speed up the search. The University Health Network has completed nearly 900 of these transplants since 2000.
But so far, the potential living donors who have come forward are not a match for Aliza’s O +/- blood type.
“Last week we heard from the hospital. There are no other applicants for Aliza, so we got more upset,” Aliza’s father Moniruzzaman Moni said.
Uncertainty has filled the hearts of Aliza’s parents since she was two months old. She was born with jaundice, a common yellow discoloration among newborns, but blood test results proved Aliza’s condition was far from common.
“The doctor called us back and said visit my office immediately and get prepared, you might need to go to the hospital,” Haque said as she wept, struggling to get words out.
They learned Aliza had Biliary Atresia, a rare liver disease that blocks the tubes that carry bile from the liver to the gallbladder, and she needed a transplant.
Aliza playing with a toy in her high chair. “We need to look for a donor from outside our family because we don't have any family here and we can’t bring a donor from Bangladesh because it's very expensive,” Haque said after her and Moni learned they were not compatible matches.
After they placed Aliza on the donor list, they returned home, but it wasn’t long before they were back at Toronto’s Hospital for Sick Children. Aliza could not digest food, but when they gave her a feeding tube, her liver was growing too big and supressing her stomach, causing vomiting and dehydration.
Since then, Aliza and Haque have been living at the hospital for more than two months while Moni takes care of their seven-year-old daughter at home. After recovering from contracting RSV, Aliza has reached a stable state with the assistance of daily nutritional IV fluids.
Aliza at the Hospital for Sick Children in Toronto. But time is proving critical. Haque said doctors have told her that Aliza needs the transplant before she reaches the age of two.
“She is almost one-year-old now and the doctor says that she doesn't have liver failure symptoms but if she has any the progress will be too fast to control,” Haque said.
“She is stable now, she grows well, she has enough weight and it’s the right age to support the transplant. This is the perfect time for her to get a transplant. Only if we can manage [finding] the liver.”
CTVNews.ca Top Stories
Young people 'tortured' if stolen vehicle operations fail, Montreal police tell MPs
One day after a Montreal police officer fired gunshots at a suspect in a stolen vehicle, senior officers were telling parliamentarians that organized crime groups are recruiting people as young as 15 in the city to steal cars so that they can be shipped overseas.
'It was joy': Trapped B.C. orca calf eats seal meat, putting rescue on hold
A rescue operation for an orca calf trapped in a remote tidal lagoon off Vancouver Island has been put on hold after it started eating seal meat thrown in the water for what is believed to be the first time.
Man sets self on fire outside New York court where Trump trial underway
A man set himself on fire on Friday outside the New York courthouse where Donald Trump's historic hush-money trial was taking place as jury selection wrapped up, but officials said he did not appear to have been targeting Trump.
Sask. father found guilty of withholding daughter to prevent her from getting COVID-19 vaccine
Michael Gordon Jackson, a Saskatchewan man accused of abducting his daughter to prevent her from getting a COVID-19 vaccine, has been found guilty for contravention of a custody order.
Mandisa, Grammy award-winning 'American Idol' alum, dead at 47
Soulful gospel artist Mandisa, a Grammy-winning singer who got her start as a contestant on 'American Idol' in 2006, has died, according to a statement on her verified social media. She was 47.
She set out to find a husband in a year. Then she matched with a guy on a dating app on the other side of the world
Scottish comedian Samantha Hannah was working on a comedy show about finding a husband when Toby Hunter came into her life. What happened next surprised them both.
B.C. judge orders shared dog custody for exes who both 'clearly love Stella'
In a first-of-its-kind ruling, a B.C. judge has awarded a former couple joint custody of their dog.
Saskatoon police to search landfill for remains of woman missing since 2020
Saskatoon police say they will begin searching the city’s landfill for the remains of Mackenzie Lee Trottier, who has been missing for more than three years.
Shivering for health: The myths and truths of ice baths explained
In a climate of social media-endorsed wellness rituals, plunging into cold water has promised to aid muscle recovery, enhance mental health and support immune system function. But the evidence of such benefits sits on thin ice, according to researchers.